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Affected families in Serrinha dos Pintos lived without a diagnosis until geneticist Silvana Santos arrived

The rare disease in a remote town where 'almost everyone is a cousin'

SERRINHA DOS PINTOS, Brazil — Before Silvana Santos arrived in the little town of Serrinha dos Pintos more than 20 years ago, residents had no idea why so many local children had lost the ability to walk.The remote town in north-eastern Brazil is home to fewer than 5,000 people, and is where biologist and geneticist Santos identified and named a previously unknown condition: Spoan syndrome.Caused by a genetic mutation, the syndrome affects the nervous system, gradually weakening the body. It only appears when the altered gene is inherited from both parents.Santos's research marked the first time the disease had been described anywhere in the world. For this and later work, she was named one of the BBC's 100 most influential women in 2024.Before Santos arrived, families had no...

May 12, 2025

The rare disease in a remote town where 'almost everyone is a cousin'

Amber Heard speaks on the stage during the 69th Taormina Film Festival on June 24, 2023, in Taormina, Italy

Amber Heard reveals names of twin babies in Mother’s Day post

LONDON — Amber Heard is now a mother of three. The actor on Sunday wrote on Instagram that she has welcomed twins into the family, a son named Ocean and a daughter named Agnes. She shared the news along with a photo of their tiny feet.“Becoming a mother by myself and on my own terms despite my own fertility challenges has been the most humbling experience of my life,” Heard, 39, wrote. “I am eternally grateful that I was able to choose this responsibly and thoughtfully.”Heard, who moved to Spain after the high profile legal battles with her ex-husband Johnny Depp, is also mother to a 4-year-old daughter named Oonagh. She wrote in the Mother’s Day post that she is celebrating the “completion of the family” that she’s strived to build for years. — Agencies

May 12, 2025

Amber Heard reveals names of twin babies in Mother’s Day post

Abu Dhabi, United Arab Emirates

Disney announces its first theme park in the UAE

BURBANK, California — Disney will build its seventh theme park, this one in the United Arab Emirates, the entertainment company announced on Wednesday.The waterfront resort will be built on Yas Island on the outskirts of Abu Dhabi, already home to Formula One’s Abu Dhabi Grand Prix, the Ferrari and Warner Bros. amusement parks, SeaWorld and a waterpark.Abu Dhabi is the capital of the United Arab Emirates, a federation of seven sheikhdoms on the Arabian Peninsula. Home to 9 million people, it has leveraged its long-haul carriers Emirates and Etihad Airways to bring in more tourists over the years. A real-estate boom and the city’s highest-ever tourism numbers have made Dubai a destination as well as a layover.Disney and Miral, the Abu Dhabi developer overseeing the project, hope to...

May 08, 2025

Disney announces its first theme park in the UAE

Abu Dhabi, the UAE capital, has focused heavily on cultural and tourism development in recent years.

Disney to open first theme park in the Middle East

ABU DHABI — The Walt Disney Company announced on Wednesday plans to open its seventh global theme park, and its first in the Middle East, in the United Arab Emirates.The waterfront resort will be built on Yas Island in Abu Dhabi, already a major tourism hub home to attractions including the Formula One Abu Dhabi Grand Prix, Ferrari World, Warner Bros. World, SeaWorld, and a major waterpark.The new theme park will be developed in partnership with Abu Dhabi-based developer Miral, which will oversee construction and operations.Disney will lead the design and development while licensing its intellectual property and providing management services.According to a regulatory filing, Disney will not provide capital for the project but will earn royalties based on the resort’s revenues, in...

May 07, 2025

Disney to open first theme park in the Middle East

Shah Rukh Khan wore a look by Sabyasachi to his first Met Gala

Shah Rukh Khan makes Met Gala debut in Sabyasachi

NEW YORK — Shah Rukh Khan is one of the world’s most famous men. And yet, strutting down the Met Gala carpet still gave the Bollywood star jitters.Khan, known as SRK to fans, made his Met debut in understated style, donning a floor-length black wool coat designed by Indian designer Sabyasachi Mukherjee. The look was complemented with several bold accessories, including a large sparkling “K” dangling from a chain and a gem-encrusted tiger head cane.To combat his nerves, perhaps — Khan told Vogue livestream hosts Ego Nwodim and Teyana Taylor that he’s “very shy” and typically skips red carpets — he asked Mukherjee to stick to his style staples.“I told Sabya I only wear black and white, but what we designed for me is what I’m most comfortable in,” he said. “That’s...

May 06, 2025

Shah Rukh Khan makes Met Gala debut in Sabyasachi

Singer Rihanna is expecting her third baby

Rihanna reveals third pregnancy at the Met Gala

NEW YORK — After revealing her second pregnancy in dramatic fashion during her 2023 halftime Super Bowl performance, Rihanna has followed up by debuting her third on the Met Gala red carpet.The last attendee to arrive at New York’s Metropolitan Museum of Art on Sunday evening, the star wore a pinstripe Marc Jacobs ensemble, accentuating her baby bump, with a polkadot cravat and oversized hat.Rihanna’s pregnancy announcement came on a historic evening, co-chaired by her partner A$AP Rocky, that celebrated exuberant Black style and dandyism. The evening’s theme was inspired by the Met’s accompanying Costume Institute exhibition, “Superfine: Tailoring Black Style.”A$AP Rocky arrived hours earlier wearing a self-designed outfit that he told Vogue was “a bit of Harlem Nights,”...

May 06, 2025

Rihanna reveals third pregnancy at the Met Gala

david attenborough ocean

Attenborough at 99 delivers 'greatest message he's ever told'

LONDON — Sir David Attenborough is launching what he says is one of the most important films of his career as he enters his hundredth year. He believes his new, cinema-length film Ocean could play a decisive role in saving biodiversity and protecting the planet from climate change. Sir David, who will be 99 on Thursday, says: "After almost 100 years on the planet, I now understand the most important place on Earth is not on land, but at sea." The ocean is the planet's support system and humanity's greatest ally against climate catastrophe, the film argues. It shows how the world's oceans are at a crossroads. A blue carpet will be rolled out at the film's premiere tonight at the Royal Festival Hall. A host of celebrities are expected to attend...

May 06, 2025

Attenborough at 99 delivers 'greatest message he's ever told'

Sobule's satirical anthem Supermodel featured in the 1995 comedy Clueless

US songwriter Jill Sobule dies in house fire

MINNEAPOLIS — Jill Sobule, a US songwriter, has died in a house fire in Minneapolis, Minnesota, her publicist has said.Sobule, whose satirical anthem Supermodel featured in the 1995 coming-of-age film Clueless, was 66.She had been due to perform on Friday in her home city of Denver, Colorado to showcase songs from her autobiographical stage musical. A free gathering will now take place in her honor.Tributes have been pouring in on social media, including from English musician Lloyd Cole, who said: "I'm really too numb to post much of anything. We loved her. She loved us."Born in 1959, Sobule's career spanned three decades, her music dealing with topics including the death penalty, anorexia and LGBTQ+ rights.Her most famous work came on her eponymous 1995 album, which...

May 02, 2025

US songwriter Jill Sobule dies in house fire

Sister Inah Canabarro

World’s oldest person dies aged 116 – British woman now holds record

BRASILIA — Inah Canabarro Lucas, a Brazilian nun recognized as the world’s oldest person, has died at the age of 116.The Congregation of Teresian Sisters of Brazil announced her death in a statement, praising her life of “dedication and devotion.”Born on 8 June 1908, she became the world’s oldest person earlier this year following the death of Japanese woman Tomiko Itooka, who also died aged 116.On her 110th birthday, Lucas received a special blessing from Pope Francis, who died last week aged 88.When asked about the secret to her longevity, she attributed it to God: "He is the secret of life. He is the secret of everything.”The nun was also a fan of the Sport Club Internacional football club in Porto Alegre. The club paid tribute to her in a post on X, celebrating her...

May 01, 2025

World’s oldest person dies aged 116 – British woman now holds record

The royal couple will mark their anniversary at a self-catering cottage on Mull after a day of official engagements

William and Kate celebrate anniversary on Isle of Mull

LONDON — The Prince and Princess of Wales are spending their 14th wedding anniversary in Scotland on the Isle of Mull.William and Kate will tour the island over two days and visit community halls that their Royal Foundation is helping to refurbish.The couple, who married at Westminster Abbey on 29 April 2011, will stay at a self-catering cottage on Mull following official engagements.William and Kate, known by their Scottish titles the Duke and Duchess of Rothesay when in Scotland, met while studying at the University of St Andrews.This is the first time Kate has been on an overnight stay during an official engagement since her cancer treatment.The princess hasn't traveled too far from home in Windsor – so to come to Mull and Iona and spend some time here is significant.We're...

April 29, 2025

William and Kate celebrate anniversary on Isle of Mull

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